Tuesday, November 11, 2014

18 Month Update!




Weight: 24 lb 6 oz
She is in the 74th percentile in weight.
A jump in percentile by 60% since her 12 month appt.

Length: 32 1/4
She is in the 72nd percentile.
A jump in percentile of 25%

Head Circumference: can't remember exactly, she is in the 83rd%
One of things they talk about in the research about her syndrome is the possibility of "microcephaly," which means small head and can effect cognitive abilities. However, clearly she does NOT have a small head! She is actually very proportional, tall like both her mommy and daddy!

Sizes: Haha, she has grown so much! Looking back at her 12 month update post, she has jumped a year in clothing size in 6 months! When she was 12 months old, clothes labeled 6-12 months fit best and now at 18 months old, clothes labeled 18-24 months fit best.

Social: Like gross motor skills, she is delayed in speech and language. However, as an early childhood specialist I know that those important gross motor skills like walking have to be mastered before kiddos start talking. I mean, really, there is a reason kids don't talk before they walk. She is saying mama, dada, buba (the dog), uh...oh, rock (like a rocking chair) and she is starting to say Hi. She waves hi and by all the time. And she will say "uhhh" for up. I know in my gut that once she starts walking her words will explode! She babbles constantly and sometimes she looks at me and just spews off a whole bunch of jumble and I just know she is telling me something. Oh, and my mom swears she has said "nana" :)

On The Move: Well, she is walking! It isn't her main mode of transportation, and honestly I don't think it will be until we fix her vision issues. I mean, would you want to walk if you couldn't see the ground below you? She will take 15-20 steps independently. We are working on standing independently. It was cool to look back and read her 12 month blog update. At that point she was barely crawling, and crawling slow. Now she crawls faster than a crab and climbs on anything and everything! Its all about progress people, and we are making progress!

Food: She eats so much and pretty much anything and everything. Which is no surprise considering she gained over 6lbs in 6 months! We stopped giving her milk before naps and bed time about a week ago and it has pretty much eliminated all the spit up issues we have been having for, well forever!

Sleep: She naps only once per day now, typically. If she had an early morning she will take a morning nap, like on Fridays when we wake her up at 6:15 instead of 7:15. She is still sleeping relatively well at night. In the past month she has been doing this new thing where she will start whimpering around 5 am and will whimper on and off until you go in. All she wants is to literally be held and cuddled for less than 5 minutes. Now, let me preface this with I am an extreme believer in "Baby Wise" sleep training, I truly believe it is the reason that Blakely is such a good sleeper and I have kept a semi good hold on my sanity. But, my kid isn't a cuddler ever so if she wants to cuddle for five minutes sometime between 3-5 am....I am not opposed and truly enjoy it :)

Likes: Eating, I mean really...its a passion for this kid. She also likes tormenting poor Max the dog, but he is so good to her. I think it is because he knows that come dinner time, she will always feed him from her chair. They are best buds :) She also loves bath time and will blow bubbles in the water! I am gonna need to get her in swim lessons this summer for sure!

Dislikes: She does not like it when I leave the room or get out of the car. She screams, currently I find it very endearing, ask me later and I may be annoyed. But she loves me so much she doesn't want me to leave :)

The past six months have been a whirlwind of a time.  But like all seasons of life the phrase "this too shall pass" is applicable. And its true...it does. The tides are turning for this family and I know better times are ahead. But I also know, that come what may. God is in control and we are incredibly blessed to have our Miss Blakely Mae Wells!

I don't have any new pictures to really share since I share them in our monthly updates so I am going to just pick one from each month that is my favorite!

13 Months: Silly Goober visiting Grandma and Grandpa Wells in Garden City!

14 Months: LOVED LegoLand!

15 months.., going on 15 years???

16 Months....Look at those long legs! 

17 Months and loving life! 

18 Months: We love our little monster!

Monday, November 10, 2014

October with our Little Punkin' Eater!

Welp. October was a bit better than September but still a rather hard month at the Wells. We started it out finding out that unlike we were orginally told, that she does in fact have a genetic disorder. For the FULL STORY jump over to our blog posting entitles 17 p13.3 Microduplication Disorder.

However, in the midst of chaos and uncertainity we have chosen to have peace in the faith that God will work all things for his glory.

We had some glorious moments in October. Momma got a few extra days at home with Blakely after Parent Teacher Conferences, we visisted First Fridays with our dear friends Ryan and Karissa, we went to the Maple Leaf Festival in Baldwin City, and Blakely turned into the cutest MONSTER for Halloween!


Looking cool in Uncle Ry's shades down at First Fridays
 
She was a good little shoppers

Mommy and Daddy had to get blood drawn too.
The nurse at Children's went gaga over Daddy's big veins!

Someone LOVED her cider donut with the Hincks.

Selfie with Mommy at Jordan's Wedding.
This was the night Blakely started walking on her own!

Blakely LOVED the petting zoo at Maple Leaf.
 
Mommy LOVED spending time with Blakely at Maple Leaf

Goats are a Mommy and Blakely favorite :)

Yep, she kissed the donkey.
 
HOORAY!

You can't tell by the pictrue, but we went on a Hayride

Love this goober!

Sister's first Sonic Drink, all hers!

Mommy is a dork and loves to match on Sundays!
Little Dare Devil!

She loves her tongue!


 


Big girl eating animal crackers at a preschool
table in mommy's room.
so stinking big!


helping herself to her milk cup.

family picture on Halloween

Little Monster with her Daddy!

Cutest Little Monster!

Seriously, the cutest!

I love her!
 




 

Sunday, November 9, 2014

September...Move Get Out the Way!

September...oh my. What can I say? Honestly, September has been has been a month like no other, I mean, the struggle is real my friends, real and full of pain. It has been full of hardships that I would not wish on my worst enemy. But I can also say that we have come out on the other side and we are full of hope that we can only find through our Savior and Lord, Christ Jesus.

We started the month out going to to a developmental pediatrician for concerns about Blakely's delay  in meeting developmental milestones. For the WHOLE story jump over to our post labeled " 17 p 13.3 Microduplication Syndrome."

The next weekend we we had a wonderful visit to Garden City to see Noah's parents and go to his cousin Aimee's wedding. We had a wonderful time visiting with Family.

We spent the rest of the month doing our best to enjoy every moment with our sweet girl. But life got crazy. I mean crazy. When it rains it pours. But, we stuck together, chose to trust God and remain faithful to God and each other. In the midst of the hardships.....misplaced blood tests, prolonged test results, broke down car, buying a new car, broke down garage door opener, buying a new garage door opener....we had some good times as you seen in these pictures :)

rare mommy daughter picture on Labor Day

Ready to go on a walk.

Face Time with Grandma and Grandpa Wells 
I LOVE this face!  

Pretty Girl at the wedding

Being pretty is hard work

She NEVER does this!


Goober!

Sweet Moments!

Move over Beethoven

Walk with Grandpa

I mean, just adorable! 

We love PUFFY VESTS!

Don't even thing of trying to take the rubbermaid container
away. Sister LOVES her organization things!

Our little Water Baby! 

Look what she can do now! 

Overalls are just the cutest! 

Ready to go pick vegetables.

Sweet Moments at the end of a long day.

Climbing Extraordinaire! 

Loving on her giraffe! 

Girlfriend LOVES her milk! 

Reading with Mommy

First time wearing the patch.

Who likes hide and go seek more?

First trip to KC IKEA!